Suffering in silence: Assessing rare disease awareness and management in Japan

July 16, 2020


July 16, 2020

Jesse Quigley Jones

Managing editor

Jesse is a managing editor for Economist Impact based in Asia, with a focus on healthcare.

Based in Hong Kong, Jesse has been working in Asia for over 10 years. Prior to the Economist Impact, he held roles in medical education, scientific publications and medical communications, working in multinational biopharmaceutical companies with a focus in vaccines and biologic medicines. Jesse has extensive experience researching and collating medical information and working with healthcare professionals and patient organisations to develop insight-driven communications programmes.

Jesse holds a BSc in Anatomy and Physiology from the University of Leeds. His editorial interests include the policy response to emerging public health issues and patient advocacy in infectious diseases.


In November-December 2019, The Economist Intelligence Unit surveyed 100 practising healthcare professionals from Japan, as part of an Asia-Pacific analysis of understanding and challenges faced in managing rare diseases.

Our survey respondents from Japan comprised general practitioners or primary care physicians (44%), specialist physicians (35%), nurses (6%) and pharmacists (14%). The majority of respondents reported working in private (64%) and public or teaching
healthcare institutions (16%).


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