Health

日本における希少疾患の現状: 認知度・QoL向上に向けた課題と取り組み

July 16, 2020

Asia

July 16, 2020

Asia
Jesse Quigley Jones

Managing editor

Jesse is a managing editor for Economist Impact based in Asia, with a focus on healthcare.

Based in Hong Kong, Jesse has been working in Asia for over 10 years. Prior to the Economist Impact, he held roles in medical education, scientific publications and medical communications, working in multinational biopharmaceutical companies with a focus in vaccines and biologic medicines. Jesse has extensive experience researching and collating medical information and working with healthcare professionals and patient organisations to develop insight-driven communications programmes.

Jesse holds a BSc in Anatomy and Physiology from the University of Leeds. His editorial interests include the policy response to emerging public health issues and patient advocacy in infectious diseases.

 

ザ・エコノミスト・インテリジェンス・ユニットは、アジア太平洋地域における希少疾患の認知度と患者が直面する課題を検証し、その一環として2019年11〜12月にかけて域内5カ国のアンケート調査を実施した。同調査の対象には、日本の医療関係者100名も含まれている。

日本の調査対象者の内訳は、開業医44%・専門医35%・看護師6%・薬剤師14%となっており、その64%は民間医療機関、16%は公的医療機関あるいは医療教育機関に所属している。

 

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